1例新生儿鱼鳞病（火胶棉样婴儿）的护理效果研究

陆通   

济宁医学院附属医院NICU 272029

【摘要】 目的  探讨临床基础护理和专科护理对新生儿鱼鳞病的效果。  方法  选取临床病例，采用基础护理联合专科护理对新生儿鱼鳞病进行临床照护。 结果  患儿住院治疗11天，无并发症，顺利出院。  结论  新生儿鱼鳞病患儿在治疗过程中，辅以综合性、精心的护理服务，能够有效缓解患儿症状。在患儿住院期间给予精心治疗与护理，可以减轻患儿的临床症状，减少患儿并发症的发生，提高患儿的生存质量。

【关键词】    新生儿  鱼鳞病  护理  效果

[Abstract] Objective To explore the effect of clinical basic nursing and specialized nursing on neonatal ichthyosis. Methods select clinical cases, using basic nursing combined with specialized nursing care for neonatal ichthyosis clinical care. Results the patient was hospitalized for 11 days without complications and discharged smoothly. Conclusion in the treatment of neonatal ichthyosis, comprehensive and careful nursing service can effectively relieve the symptoms of children. Careful treatment and nursing during hospitalization can reduce the clinical symptoms, reduce the occurrence of complications and improve the quality of life of children.

[Key words] nursing effect of neonatal ichthyosis

前言：先天性鱼鳞病（congenitai  ichthyosis）是一组常染色体单基因遗传性皮肤脱屑性疾病，共同的特征是皮肤粗糙干燥脱屑。新生儿期起病的先天性鱼鳞病包括性联寻常性鱼鳞病、板层状鱼鳞病、显性遗传先天性鱼鳞病样红皮病、胎儿鱼鳞病、火棉胶婴儿等^[1]。该病在临床上不多见，主要以对症治疗、精心护理为主，目的是缓解患儿症状，减少并发症。